JUST under £2,000 has been raised for Muscular Dystrophy UK and Help4Harry, a campaign launched in aid of Farnham school boy, Harry Barnley who suffers from a rare and life-limiting degenerative disease.
A number of local schools and businesses came to the charity’s assistance and went ‘orange for Harry’ – the task was simple, wear orange for a day and donate money.
Duchenne muscular dystrophy is a severe muscle-wasting condition, which causes muscles to weaken and waste over time. Around 2,500 people are currently living with this condition in the UK alone, a condition which affects mainly boys, many of whom are in wheelchairs by the age of 10.
Harry, who attends William Cobbett Primary School, was diagnosed with duchenne muscular dystrophy in June 2013.
It was then that Harry’s mother, Sue Barnley, launched the Help4Harry campaign, which has raised more than £215,000 for the Duchenne Research Breakthrough Fund with Muscular Dystrophy UK - which provides vital information, advice and support to help people live as independently as possible, accelerates progress in research and drives the campaign for access to emerging treatments.
Others to join William Cobbett Primary School in the charity fundraiser was Farnham Heath End School, Badshot Lea Infant School, Elm Tree Pre-School, Leap Frogs Nursery, Farnham Leisure Centre and Ducati Alton.
Harry’s mum, Sue, said: “The total raised was £1,825.92 which is incredible. Unfortunately Harry couldn’t make the Go Orange Day as he had a fall and has managed to break his femur, which is a total nightmare. He is in Frimley Park Hospital on traction and is likely to be there for several weeks.
William Cobbett School raised an impressive £635.52.”
To follow Harry on his personal journey, visit www.help4harry.co.uk.